PANDAS (Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcal Infections) is a devastating autoimmune illness affecting 1 in 200 children. It occurs when strep triggers a misdirected immune response, resulting in inflammation on a child’s brain. In turn, the child quickly begins to experience debilitating symptoms such as OCD, anxiety, tics, personality changes, depression, decline in math and handwriting abilities, sensory sensitivities, restrictive eating, rage, aggression and more. PANS (Pediatric Acute-onset Neuropsychiatric Syndrome) is similar to PANDAS, but other infectious or environmental factors are the triggers, not strep. Equally destructive. Many kids suffer needlessly because of the lack of awareness of PANDAS/PANS. Parents can experience deep personal and financial stress caring for the one they love. Siblings, too, suffer as they learn to navigate a changed family member and changed relationships. That’s a lot of broken hearts. But it doesn’t need to be that way. The more parents, teachers and the medical community learn about PANDAS/PANS, the sooner we can help our children get the medical treatment and the support they deserve so they can recover and reclaim their young lives.
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